Different, Not Deficient

BY ADRIENNE FRANK

Owen Jones

I have something important to tell you, my 7-year-old son, Owen (pictured above), said one evening last fall as we drove home from school. There are two kinds of people in the world: Rs and Fs. Im an R, but I want to be an F.

His choice of letters was significant. F is Owens favorite lettera nod to the love of firetrucks hes nurtured since toddlerhood. Like any one of us, hes keenly aware of what hes not. But instead of longing to be thinner or richer, Owen simply wants not to be different.

My beautiful boy has a complicated cocktail of diagnoses: autism, ADHD, dyslexia, dyscalculia and executive function disorder. He can be particular, rigid, anxious and singularly focused on penguins or subways, of which he possesses an encyclopedic knowledge. He can explode with anger or flap with joy. Inquisitive and creative, Owen boasts a triple letter score vocabulary and asks thoughtful, often unanswerable questionsWhy dont chickens have eyebrows?yet he has little sense of time or personal space. Owen is sensitive to loud noises and chaotic environments, and often prefers to draw by himself in blissful silence.

My husband, Sam, and I had been debating when we should tell Owen that hes on the spectrum, but it never seemed the right time. Until it was.

After a January reporting trip to the Hussman Center, I was talking to Sam about the story when Owenlistening stealthily while tapping furiously on his iPadchimed in: Mama, do I have autism?

The question that Ive been bracing myself for since my only child was diagnosed in 2015 lingered for what felt like an eternity. My eyes met Sams and he gave me a gentle nod.

Yes, I said. You have autism.

I did my best to explain what that meant, but it was impossible to avoid the word that hed already begun to associate with being deficient, odd, less than. Your brain is just wired differently.

Owen didnt say a peep about it for a month, until I told him that, due to a childcare snafu, he had to go with me back to the Hussman Center for the Friday evening social group. Its an autism club? he asked cautiously but curiously as we sat in traffic.

Yep, I replied. Isnt that cool?

And it was.

Ive long suspected that autistic people have a sixth sense when it comes to spotting others on the spectrum. So it was no surprise when one friendly young man after anotherSam, Chris, Daniel, Robertapproached us during the social group to chat with my son.

How old are you, little man? Whats your favorite Lego movie? Do you play Minecraft? Do you like SpongeBob?

Seven; the first one; yes; and oh, yes, he said, smiling. Soon, Owen was telling them about school and his cats, Finn and Cinnamon. It was nice talking to you, he chirped, giving them five as we moved from one room to the next. I could see the wheels spinning in his head: If this is what autismwhat being differentlooks like, it might be OK.

Two hours later, we were preparing to leave when we bumped into 25-year-old Christopher Garrett. After entertaining my questions, he shifted his focus to Owen, who revealed that some of his classmates pick on him.

Buddy, being different is your superpower, said Christopher, as Owen lit up and I teared up.

Too often, we focus on the challenges associated with autism: social isolation, bullying, anxiety and depression, unemployment, learning disabilities and comorbid conditions. And make no mistake, those struggles are very real for people on the spectrum and those who love them.

But we mustnt forget autisms silver lining: how, through shared experience and a shared love of SpongeBob SquarePants, those on the spectrum can form an affirming, inclusive community where being different isnt the thing that sets people apartits the very thing that brings them together.

On the drive home, I asked Owen if he thought Christopher and the others were
Rs or Fs.

Oh, Mama, at the autism club, were all Fs.

Adrienne Frank is a writer and editor in Bethesda, Maryland.